In my last entry, I felt hopeful. Now, once again I feel hopeless. My hope was in the thoughts that maybe I could avoid the marfans-fate of so many of my family members. Now that another one of my relatives has died, I'm not sure how I feel. Of course I can be hopeful in that Cozaar the marfans-miracle-drug will help me within my lifetime, but thats not for certain.
And what about everyone else? What about my Grandpa and everyone else this disease has claimed?
Dena, my cousin died last night. She had an anuerysm and the doctors actually successfully repaired it, but after surgery she didn't wake up and they ran tests and saw that she was brain dead.
Whats the point of having your chest cut, your sternum broken, and your heart sewn and patched and LIVE though it, only to become brain dead. Its such a waste.
It doesn't seem fair.